Seven months on Valcyte; weak shoulders

Still not much change in my symptoms, but I have had another antibody test and it appears that the titers are dropping on both HHV-6 and EBV. In fact the HHV-6 is now considered a past infection! It is perhaps a sign that the Valcyte may be working. My provider has offered to keep me on the Valcyte for another six months. In the meantime, she also found I have spikes in cortisol during the night and morning, and is treating that with herbal/natural supplements. I think it has helped my sleep and lessened my nighttime hot flashes, along with the progesterone cream. The waiting game continues. My muscles around the shoulder blades are weak again, making it very easy to pull and overuse them and leave me non-functional, on my back, for a day at a time. Very frustrating. I use medical tape for brief periods across the upper back to provide support (a trick I learned from a physical therapist), but can only stand it for a few hours before the tape irritates my skin too much. Yesterday I pulled weeds for no more than ten minutes, and it was too much; it took me down. I don't know if I will ever learn to stop myself. If I had just gone to get a weeding tool I have, to keep from bending over...

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