YES! I HAVE ISAC!!

If you have fibro, you know why I am so happy to find out that my blood test came back abnormal! We Fibromyalgics are cursed by normal blood tests that leave us at a dead end, and a doctor who is beginning to wonder if it's all in our heads. But when they come back with an objective, measurable problem, it's as good as getting a Christmas present--actually, better. I have ISAC: Immune System Activation of Coagulation. My fibrinogen level was high, though on the upper limits of normal, and the platelet activation index was abnormal. I am finding more helpful information on this on the net. You can too. Hint: type in "ISAC Panel" on your search engine. See especially this article by Dr. Dave Berg, who developed the test I had: http://www.springboard4health.com/notebook/health_hypercoagulation_ill.html Jacob Teitelbaum explains how he uses the protocol for this condition in his book, "Fatigued to Fantastic". You can buy this book on my widget at the top of this page. At this point in time my provider is not so sure she wants to use heparin with me because of the dangers of bleeding. I'm not sure I want to use it either. So these are the items I will try: 1. lumbrokinase--an enzyme for breaking down the fibrin (I am using the cheap generic from Vitaminshoppe.com. It's a product from China, which scared me at first, but it is rather difficult to avoid China products nowadays) 2. grape seed extract--to thin the blood 3. colloidal silver--for fighting infections (I have mycoplasmas) 4. Candex and Candizyme--for candida infections 5. fish oil--another blood thinner (I'm trying 5 grams of EPA a day, but the oil is sure pouring out of my pores :)) I can do all of this with over-the-counter items. I will also see if my provider will put me on antivirals and antibiotics again. I am grateful to the Lord for this opportunity to seek health once again. I turned 50 last month, and I would like the next 40 years to be pain-free--if it is His will. To Health!

P.S. this protocol did nothing for me

Comments

Post a Comment

Popular posts from this blog

Our 24th anniversary

I have been using natural forms of the ISAC fibrin treatment, as described earlier on my blog: namely, blood thinning substances such as aspirin and grape seed extract, and lumbrokinase to break down the fibrin. I have not aggressively sought treatment with heparin, as it would require some travel on my part, as well as setting aside my family responsibilities, and that is a huge obstacle, given my condition. I wouldn’t expect the natural route to have very immediate effect, as it can take up to a year even with heparin. In the meantime I have been tested for and seem to be positive for two viruses: Epstein-Barr and HHV-6. They were antibody tests, and only indicate a history of infection. I would need to get tested again to try to determine if the infections are still active. In addition, Dr. Berg has emailed me saying my ISAC results indicate there is SOME live viruses present in my blood, and he suspected they were the two mentioned above. So I still need to confirm that is
Read more

Starting on ValCyte

I went to see my provider on Friday, armed with more research I found on HHV-6 and EBV. I discovered information on ValCyte (ganciclovir) which has shown positive results on CFS patients with both viruses in two studies by Jose Montoya of Stanford University. To my surprise, Mary Lou had heard of ValCyte and had prescribed it once before but it was so expensive the patient opted not to take it. I am soooo grateful that God has provided John with a teaching job that gives us good insurance. It will cost around $13,000 for the six-month course of this drug, but I will only pay $2800. God is so good! The book "From Fatigued to Fantastic"  describes the protocol, and Mary Lou is following the book exactly. There is bloodwork to be done regularly to check for side effects. Now we wait, pray, and see. It can take four months before patients feel any better. The drug works to stop the viruses from replicating their DNA, thereby stopping reproduction, and they eventually die
Read more

"I'm on a new drug, one that won't make me itch..."

So I saw my N.P. last Thursday and she has taken a fairly new tack. She used to favor alternative therapies, but after being reviewed by the state authorities, I think she's gotten gun-shy and is following the mainstream protocols. She wanted me to try one of the three "new" drugs now FDA-approved for fibromyalgia. All of them, from what I can tell, are not much different from what I've tried through the years. They are all called anti-depressants "but not prescribed to me for depression" (I've heard this before!). The older drugs were called SSRI (Selective Serotonin Reuptake Inhibitors). The new one I'm on, Sabella, is an SNRI (Serotonin and Norepinephrin Reuptake Inhibitor. This is based on the theory that FMS is caused by a chemical imbalance in the Central Nervous System, or brain. She said it increases dopamine in the brain. I am skeptical that it will help, but I'll give it a month. I have to titrate to the therapeutic level, and if I go
Read more