My Post-Fibromyalgia Life: The Caring Carnivore

 I have started a new blog to share more about my life post-fibromyalgia: The Caring Carnivore. There you will find some of my latest recipes for eating an animal-based diet. Check it out at thecaringcarnivore.com. See you there :)

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Our 24th anniversary

I have been using natural forms of the ISAC fibrin treatment, as described earlier on my blog: namely, blood thinning substances such as aspirin and grape seed extract, and lumbrokinase to break down the fibrin. I have not aggressively sought treatment with heparin, as it would require some travel on my part, as well as setting aside my family responsibilities, and that is a huge obstacle, given my condition. I wouldn’t expect the natural route to have very immediate effect, as it can take up to a year even with heparin. In the meantime I have been tested for and seem to be positive for two viruses: Epstein-Barr and HHV-6. They were antibody tests, and only indicate a history of infection. I would need to get tested again to try to determine if the infections are still active. In addition, Dr. Berg has emailed me saying my ISAC results indicate there is SOME live viruses present in my blood, and he suspected they were the two mentioned above. So I still need to confirm that is
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FIBRIN: the missing link to fibromyalgia? Not mine...

I wrote: "I am hot on another possible explanation and cause of fibromyalgia: hypercoagulability. I received the tip from a Dr. Grams of Pennsylvania, whose site at hyperbaric4autism.com caught my eye. He is a chiropractor who has had good response to the treatment for it. He referred me to a Dr. David Berg of Hemex Labs, http://www.hemex.com/ . This website has scientific articles on the hypothesis that Dr. Berg, a chemist, first proposed nine or ten years ago. The theory is that the body, recognizing an infection and unable to shake it, begins a cascade response in the immune system which builds up fibrin deposits on the walls of the capillaries to "wall off" the infection. This in turn reduces oxygen-exchange out of, and re-uptake of waste products into, the bloodstream, effectively starving the cells of the body and causing pain and fatigue. This is the best explanation I have come across so far of my condition..." P.S. This rabbit trail didn't help me at al
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Starting on ValCyte

I went to see my provider on Friday, armed with more research I found on HHV-6 and EBV. I discovered information on ValCyte (ganciclovir) which has shown positive results on CFS patients with both viruses in two studies by Jose Montoya of Stanford University. To my surprise, Mary Lou had heard of ValCyte and had prescribed it once before but it was so expensive the patient opted not to take it. I am soooo grateful that God has provided John with a teaching job that gives us good insurance. It will cost around $13,000 for the six-month course of this drug, but I will only pay $2800. God is so good! The book "From Fatigued to Fantastic"  describes the protocol, and Mary Lou is following the book exactly. There is bloodwork to be done regularly to check for side effects. Now we wait, pray, and see. It can take four months before patients feel any better. The drug works to stop the viruses from replicating their DNA, thereby stopping reproduction, and they eventually die
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